When parents hear that their baby has been diagnosed with gastroshiza, one of the first reactions is confusion followed by a flood of questions. Unfortunately, this condition is often surrounded by misinformation that can add unnecessary stress during an already challenging time. To help parents and caregivers, this article breaks down the most common myths about gastroshiza and reveals the facts you need to know. Understanding the truth can help you make informed decisions and support your child’s health and future with confidence.
What is Gastroshiza?
Gastroshiza is a birth defect where a baby is born with the intestines outside the body, protruding through an opening near the belly button. Unlike other abdominal wall conditions, this defect happens without a protective sac around the organs. Advances in neonatal care and surgery have dramatically improved survival rates, giving most babies a strong chance of recovery.
Myth 1: Gastroshiza is Always Caused by Something the Mother Did
Fact: The Exact Cause is Still Unclear
Many parents immediately blame themselves when they hear this diagnosis, but research shows gastroshiza is not directly caused by lifestyle choices. While factors like young maternal age and certain environmental exposures may slightly increase risks, there is no single behavior or action by the mother that guarantees the condition. Gastroshiza is considered a random developmental issue that occurs during early pregnancy.
Myth 2: Babies with Gastroshiza Cannot Survive
Fact: Survival Rates Are Very High
A few decades ago, gastroshiza was a serious and often life-threatening condition. However, today survival rates in developed countries are above 90%. Thanks to advances in neonatal intensive care units (NICUs), surgical techniques, and infection control, most babies with gastroshiza recover after surgery and go on to live full lives. Early diagnosis through prenatal ultrasound and timely medical planning play a key role in positive outcomes.
Myth 3: Surgery Completely Fixes the Problem Immediately
Fact: Recovery Can Take Time
Surgery is essential for repairing gastroshiza, but it’s not always a single-step fix. Some babies may undergo primary closure (one surgery), while others need staged repairs where the intestines are gradually placed back into the abdomen. Even after surgery, recovery involves careful monitoring, gradual feeding, and prevention of complications like infection or bowel issues. Parents should expect a hospital stay that may range from weeks to months, depending on the severity of the condition.
Myth 4: Babies with Gastroshiza Cannot Be Breastfed
Fact: Breast Milk Is Strongly Recommended
While babies may not be able to breastfeed immediately after birth due to the surgery and recovery process, breast milk is still the best source of nutrition once feeding begins. Initially, many infants receive nutrients through IV fluids or feeding tubes until their digestive system is ready. When possible, expressed breast milk can be provided, offering immune protection and easier digestion compared to formula. Mothers are encouraged to pump breast milk during this time so it’s available for the baby when feeding becomes safe.
Myth 5: Children with Gastroshiza Will Always Have Digestive Problems
Fact: Many Live Without Ongoing Complications
Some children may experience feeding difficulties, reflux, or slow digestion early in life, but many outgrow these issues with proper medical guidance. While a small percentage may develop long-term conditions like short bowel syndrome (if large sections of intestine were damaged), most children grow and develop normally after their recovery period. Pediatric follow-up care is important to ensure milestones are met and nutrition needs are fulfilled.
Myth 6: Gastroshiza Only Affects the Intestines
Fact: Other Organs May Sometimes Be Involved
Gastroshiza most commonly involves the intestines, but in some cases, other organs such as the stomach or liver may protrude outside the body. The severity varies from one baby to another, and this determines the type of surgery and recovery plan needed. A multidisciplinary care team—including surgeons, neonatologists, and nutrition specialists—usually works together to manage each case individually.
Myth 7: Parents Cannot Do Anything to Help Their Baby Recover
Fact: Parental Involvement Is Critical
While medical teams handle the surgeries and treatments, parents play an essential role in their baby’s recovery. From providing breast milk to participating in skin-to-skin contact when safe, parents help promote healing and bonding. Being emotionally present, advocating for the baby’s needs, and learning how to care for the baby after discharge are equally important. Many hospitals also encourage parents to participate in feeding and comfort care as soon as possible.
Myth 8: Babies with Gastroshiza Will Always Have Visible Scars or Abnormalities
Fact: Surgical Scars Are Often Minimal
Modern surgical techniques focus not only on repairing the defect but also on minimizing scarring. Most children will have a scar near their belly button, but over time it usually becomes less noticeable. In many cases, children grow up with little to no visible difference in appearance compared to their peers.
Myth 9: Having One Baby with Gastroshiza Means All Future Babies Will Have It Too
Fact: Recurrence Risk is Low
Parents often worry about having another child with the same condition. The risk of recurrence is slightly higher than in the general population but still considered low. Most families go on to have healthy pregnancies after having a child with gastroshiza. Genetic counseling and prenatal screening can provide reassurance and early detection in future pregnancies.
Myth 10: Life After Gastroshiza Is Filled with Limitations
Fact: Most Children Lead Normal, Active Lives
Once babies recover and grow stronger, they can typically enjoy the same activities, education, and social opportunities as other children. Some may need additional checkups during childhood, but the majority live healthy and active lives. Parents should know that while the journey may begin with challenges, the long-term outlook for children with gastroshiza is very hopeful.
Final Thoughts
Gastroshiza can feel overwhelming, especially when myths cloud the truth. The reality is that with modern treatment, strong survival rates, and proper parental support, most babies overcome this challenge and thrive. By separating fact from fiction, parents can focus on what truly matters—supporting their baby’s health, recovery, and future.